PEAR: Public Health, Education, Awareness, Research Our Voices, Our Health: Involving young people in public health research
NCB have been running a small project in London to look at how young people could be involved in public health research, and have now been given some money by the Wellcome Trust (a charity) to set up the PEAR group, which will run for two years (2008-2010).
The project supports young people to contribute to UK public health research and decisions being made about public health issues http://www.ncb.org.uk/pear/home.aspx
People in Research
People in Research helps members of the public make contact with organisations that want to actively involve them in clinical research. For example this could be by helping to decide what gets researched or possibly carrying out part of the research. http://www.peopleinresearch.org/
PRIME Patient Experience Database
The purpose of the database is to make detailed informtion about patient experiences accessible to a wide population, particularly researchers.
http://www.prime-cfs.org