Supporting public involvement
in NHS, public health and
social care research

INVOLVE
NSH National Institute for Health Research

View site in larger text

Arrow
Arrow
Arrow
Arrow
Arrow
Arrow
Arrow
Arrow
Arrow


INVOLVE Documents

To download a report click on a 'Download' button and save the PDF file to your hard-drive. To view or print the document open it in 'acrobat reader'. If you don't have 'acrobat reader' download it from


2011, November

Public involvement in research applications to the National Research Ethics Service (NRES)
 (M Tarpey, INVOLVE)
No. of pages: 24.   NEW
A joint study published by the National Research Ethics Service (NRES) and INVOLVE looks at the extent and nature of reported public involvement in health and social care research.

It analyses information routinely collected by NRES as part of the applications process for ethical approval of research projects. The study was based on a sample of applications submitted to NRES in 2010.

The report :

• provides a ‘snapshot’ of public involvement in research and identifies practical actions for funders, sponsors and regulators in ensuring and facilitating further patient and public involvement

• provides some key insights into the extent to which patients and the public are involved in research, and the understanding of researchers and funders of effective involvement


Reference: Tarpey M., (2011) Public involvement in research applications to the National Research Ethics Service, INVOLVE, Eastleigh.  
1 Download button

2011, September

INVOLVE survey of priorities for public involvement across the NIHR

No. of pages: 19.   NEW
In July 2011 we contacted patient and public involvement (PPI) leads and managers across the NIHR and asked them each to identify three key public involvement priorities that they thought would benefit from being supported nationally by INVOLVE or across the NIHR. This report highlights the key themes identified.  
2 Download button

2011, March

What you need to know about payment: an introductory guide for members of the public who are considering active involvement in NHS, public health or social care research
 (Alison Faulkner)1
No. of pages: 20.  
This guide is for you if you are thinking about getting actively involved in research (see section 1 for definitions of these terms) and you are being offered expenses and/or payment for your involvement.

It offers answers to some frequently asked questions and suggests where you might get advice about your particular circumstances.

This guide does not attempt to answer all of the questions you might have about being paid for involvement; it is a complex area and it would be difficult to cover everyone’s individual circumstances.

We strongly advise you to get expert advice about your own personal financial circumstances before accepting payment for involvement in research.

This is the second of two guides about payment for involvement published by INVOLVE. The other guide, which is aimed at researchers and research commissioners responsible for paying people for their involvement, contains more detail about some of the issues touched on here.

See Payment for Involvement: a guide for making payments to members of the public actively involved in NHS, public health and social care research (INVOLVE, 2010).  
3 Download button

2011, January

INVOLVE submission to the Department of Work and Pensions Select Committee inquiry -
 (Universal Credit – Welfare that works. )
No. of pages: 4.  
This is the the submission on behalf of INVOLVE, to the Government’s inquiry on Universal Credit.  
4 Download button

2011, January

INVOLVE Minutes

No. of pages: 8.    
5 Download button

2010, December

The Association of Medical Research Charities (AMRC) and INVOLVE report on Patient perspectives on the regulation and governance of medical research December 2010

No. of pages: 13.  
In March 2010 the Academy of Medical Sciences (AMS) was asked by the Department of Health to conduct an independent review of the regulation and governance of medical research. The review is chaired by Sir Michael Rawlins and is likely to report early in 2011. In the course of its inquiry the panel invited AMRC and INVOLVE to hold a workshop which would provide an insight into patient perspectives on the conduct of research and associated regulatory issues. It was agreed that the conclusions of the workshop would be fed into the review and that AMRC and INVOLVE would separately produce an independent report of the event. The workshop was held on Tuesday 2nd November 2010.  
6 Download button

2010, September

INVOLVE Minutes

No. of pages: 20.    
7 Download button

2010, June

INVOLVE Minutes

No. of pages: 7.    
8 Download button

2010, May

Examples of training and support for public involvement in research: Sharing innovative practice workshop
 (Bec Hanley, TwoCan Associates)
No. of pages: 63.  
This report stems from a workshop held by INVOLVE in January 2010. It contains short descriptions of 12 examples of training and support for public involvement in research as well as a summary of what took place at the workshop.  
9 Download button

2010, March

INVOLVE's response to the 2nd REF Consultation sent in on 16th December 2009

No. of pages: 5.    
10 Download button

2010, February

INVOLVE policy on payments and expenses for members of the public including INVOLVE Group members (February 2010)
 (INVOLVE)
No. of pages: 24.  
This document lays out the internal policy and procedures for payments and expenses for members of the public involved with our work. The policy explains when and how payments will be made and expenses covered. These procedures are specific to INVOLVE and our organisation. Others may find the information in the policy useful in order to develop a policy relevant to their organisation.  
11 Download button

2010

INVOLVE Operational Plan 2011 - 2012

No. of pages: 12.    
12 Download button

2008, October

INVOLVE response to the consultation on the NHS Constitution October 2008

No. of pages: 2.  
INVOLVE response to the consultation on the NHS Constitution
October 2008
 
13 Download button

2008, June

INVOLVE Operational Plan 2008 - 2009

No. of pages: 15.    
14 Download button

2007, October

INVOLVE Strategic Plan 2007-2011

No. of pages: 8.  
Outlines the history and activities of INVOLVE since 1999. Details the working principles and strategic objectives for INVOLVE for 2007-2011.  
15 Download button

2007, October

Report of the work of INVOLVE 2003-2007

No. of pages: 15.    
16 Download button

2007, July

INVOLVE Operational Plan 2007-2008

No. of pages: 16.    
17 Download button

2007, March

Memorandum of evidence Re: New Enquiry – Public and Patient Involvement in the NHS
 (INVOLVE)
No. of pages: 5.  
This paper outlines INVOLVE's responses to two of the questions raised by the House of Commons Health Committee;
    What is the purpose of patient and public involvement?

    What form of patient and public involvement is desirable, practical and offers good value for money?
 
18 Download button

2006, August

INVOLVE Operational Plan 2006-2007

No. of pages: 34.    
19 Download button

2006, July

INVOLVE Response to the Review of UK Health Research July 2006
 (Nick Partridge)
No. of pages: 6.    
20 Download button

2005, October

INVOLVE's response to consultation - Best Research for Best Health: A new National Health Research Strategy (2005)

No. of pages: 5.  Filesize: 115kb.    
21 Download button

2005, June

INVOLVE's response to a consultation from the National Institute for Health and Clinical Excellence (NICE) on the operating model for the Centre for Public Health Excellence (CPHE)
 (INVOLVE)
No. of pages: 3.  Filesize: 129kb.    
22 Download button

2005, May

INVOLVE'S response to the National Institute for Health and Clinical Excellence (NICE) Consultation on the role of regional teams in the new organisation.

No. of pages: 2.  Filesize: 114kb.  
NICE invited comments from key stakeholders on how the nine regional teams can best support the functions of the new organisation. Responses were invited to specific questions posed.  
23 Download button

2005, April

INVOLVE Operational Plan 2005/06

No. of pages: 9.  Filesize: 174kb.  
The Operational Plan outlines our work for 2005/06 in relation to our strategic objectives.  
24 Download button

2005, April

Operational Plan 2005/06 Appendix

No. of pages: 39.  Filesize: 361kb.  
Detailed outlines of our plans of work for 2005/06  
25 Download button

2004, December

INVOLVE's response to the Department of Health's consultation on Ethics Review in Social Care Research

No. of pages: 6.  Filesize: 137kb.  
INVOLVE have responded to the consultation paper by examining the merits or otherwise of the four models in respect of service user involvement and known service user concerns about ethics in social care. It has also made suggestions for improving or combining different elements of the models.  
26 Download button

2004, December

Presentation to Ad Hoc Advisory Group on NHS Research Ethics Committees
 (INVOLVE)
No. of pages: 6.  Filesize: 31kb.  
Lord Warner has set up an Ad Hoc Advisory Group on NHS Research Ethics Committees. It will provide independent advice to Department of Health ministers and undertake a review of the systems that support NHS Research Ethics Committees in England, and make recommendations for further steps to improve their operation, building on changes already under way. INVOLVE was invited to present to the Committee in December. Some of the issues we raised with the committee were around: limited awareness and understanding of public involvement in research amongst some ethics committees; limited patient and carer involvement in the NHS ethical review process; and some of the procedural barriers presented by ethics committees to public involvement in research.  
27 Download button

2004, September

INVOLVE Operational Plan 2004-2005

No. of pages: 7.  Filesize: 273kb.  
INVOLVE'S Operational Plan outlines our work for 2004/05 in relation to our strategic objectives.  
28 Download button

2004, July

INVOLVE Public Health Strategy & Action Plan 2004/2005

No. of pages: 12.  Filesize: 253kb.  
This strategy and action plan is intended to inform members of INVOLVE, the Support Unit and other interested stakeholders about INVOLVE'S priorities, aims and activities in relation to public health research during 2004/05  
29 Download button

2003, July

INVOLVE Strategic Plan 2003-2006: Creating the Expert Resource

No. of pages: 12.  Filesize: 249kb.  
Outlines the history and activities of INVOLVE since 1999. Details the working principles and strategic objectives for INVOLVE for 2003-2006.  
30 Download button

2000, November

Working Partnerships Consumers in NHS Research 3rd Annual Report

No. of pages: 20.  Filesize: 138kb.    
31 Download button

1999, April

Involvement Works Consumers in NHS Research 2nd Annual Report

No. of pages: 22.  Filesize: 75kb.    
32 Download button

1998, March

Research: What's in it for Consumers? 1st Report of the Standing Advisory Group on Consumer Involvement in the NHS R&D Programme to the Central Research & Development Committee

No. of pages: 27.  Filesize: 111kb.    
33 Download button

Top of Page

 



Last updated 29/11/2011 09:31:48
Bobby WorldWide Approved AAA Copyright © 2004 INVOLVE. All Rights Reserved.
Use of this site indicates you accept the Terms of Use & Privacy Statement