6th National Conference
‘Public involvement in research: getting it right and making a difference'
Thank you to everybody who attended our conference in Nottingham and helped to make it such a successful and enjoyable event.
The conference abstracts and presentations will all
be available on the website shortly.
On day 2 of the conference Judy Scott and Alison Faulkner ran a Single Issue Workshop "Payment for involvement in research: helpful benefit rules and systems for avoiding benefit problems" Judy Scott developed a handout for this workshop outlining some helpful information on benefit rules and systems.
INVOLVE Impact project – Can you help?
The INVOLVE Impact project started in 2007 and its aim is to extend our knowledge and our learning on the impact of public involvement in health and social care research. This work builds on an earlier piece of work which had identified 85 references relevant for the invoNET library . We have broadened our literature searching to include 9 electronic databases and following various rounds of reviewing titles and abstracts we have to date identified 147 references for full publication review. From this selection 50 articles have been identified as including evidence on the impact of public involvement in research. These references will be added to the invoNET library in the next month.
We would however like your help as most of the evidence we have identified so far has come from ‘peer reviewed’ literature in academic journals. We are also interested in looking at ‘grey’ literature (for example unpublished reports, or newsletter articles) which describe the effect of public involvement either on: the research; the way the research was carried out; the researchers or on service users and carers themselves. The documents need to be publicly available in some way (for example via an organisation’s website, or by contacting the organisation directly).
If you are aware of any relevant literature, please do get in touch with us to help us build the invoNET library and review what has been written about the impact of public involvement in research.
We hope to disseminate the findings as widely as possible and ensure that the information is relevant to the different audiences interested in the impact of public involvement in research.
For further information please contact:
Kristina Staley
Kristina@twocanassociates.co.uk
Or Helen Hayes at the Support Unit 02380 651088 hhayes@invo.org.uk
Examples Projects
INVOLVE has recently commissioned two new projects to help us identify examples of public involvement in research. One project is gathering examples of user and carer involvement in social care research and is being carried out by the University of Bristol. Another is gathering examples of user-controlled research and is being carried out by a collaboration of Shaping Our Lives, the Social Perspectives Network, and Brunel University.
INVOLVE wants to gather examples in these two areas to help us build and develop our knowledge. It will also help us map out what the extent of activity is in these areas, help further populate the INVOLVE database of research projects, and form a basis for later in-depth study.
Examples that meet the criteria will be added to the INVOLVE online database. If you also know of others who have been involved in such projects, please let them know.
National Research Ethics Service
We are pleased to be working with the National Research Ethics Service and this summer we are to undertake a survey of lay Research Ethics Committee members on their behalf. We hope to find out more about who they are, the perspectives they bring and any support they need.
To find out more about our work please visit the other sections in About INVOLVE and read the INVOLVE Operational Plan 2008-2009 and INVOLVE Strategic Plan 2007-2011.
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