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You can search for publications by browsing through All Publications or by viewing the relevant section. If you are looking for documents about INVOLVE or copies of our minutes, please visit the About INVOLVE Section.  If you would like to view copies of our newsletters please visit the News section.  Details of any consultations that INVOLVE has responded to can be found in INVOLVE documents.

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2008, November NEW A report of the joint seminar by INVOLVE and ESRC National Centre for Research Methods. This one day seminar was for researchers, including user researchers, with an interest in public involvement in applied social science research. Social research and public involvement: colliding worlds?: Seminar report No. of pages: 28.  Filesize 446 kb

2008, October NEW INVOLVE response to the consultation on the NHS Constitution October 2008 INVOLVE response to the consultation on the NHS Constitution October 2008 No. of pages: 2.  Filesize 108 kb

2008, July Guidance that has been agreed with the Department of Health on payment rates to members of the public for attendance at Committee meetings and carrying out peer review. This is an update to the original version published in 2006 (INVOLVE)First published August 2006, revised July 2008 National Institute for Health Research: Payment rates for public involvement No. of pages: 2.  Filesize 58 kb

2008, June INVOLVE Operational Plan 2008 - 2009 No. of pages: 15.  Filesize 179 kb

2007, October Outlines the history and activities of INVOLVE since 1999. Details the working principles and strategic objectives for INVOLVE for 2007-2011. INVOLVE Strategic Plan 2007-2011 No. of pages: 8.  Filesize 55 kb

2007, October Report of the work of INVOLVE 2003-2007 No. of pages: 15.  Filesize 79 kb

2007, July INVOLVE Operational Plan 2007-2008 No. of pages: 16.  Filesize 102 kb

2007, March An A5 leaflet for researchers, research commissioners/funders, members of Research Ethics Committees and it may also be helpful for members of the public. (INVOLVE) Good practice in active public involvement in research No. of pages: 2.  Filesize 62 kb

2007, March The Public Information pack (PIP) is made up of four booklets and is for members of the public who are interested in getting involved in NHS, public health and social care research. The booklets have been produced by INVOLVE with support and advice from members of the public to help us ensure we cover the kind of information people need, when first getting involved in research. The booklets are printed in colour with images so please do contact us for a hard copy or email pip@invo.org.uk  (INVOLVE 2007) The Public Information Pack (PIP) Booklet 1 No. of pages: 34.  Filesize 671 kb Booklet 2 Getting started No. of pages: 30.  Filesize 849 kb Booklet 3 Finding out more No. of pages: 37.  Filesize 278 kb Booklet 4 Jargon Buster No. of pages: 18.  Filesize 258 kb

2006, September A series of seven guidelines to help commissioners, researchers and the public to think about public involvement in research commissioning. (INVOLVE 2006) Commissioning Guidelines Filesize 224 kb Getting involved in research grant applications: guidelines for members of the public P1 Filesize 224 kb Peer reviewing research proposals: guidelines for members of the public P2 Filesize 222 kb Being a member of a commissioning board:Guidelines for members of the public. P3 Filesize 155 kb Public involvement in research grant applications:guidelines for commissioners. C1 Filesize 212 kb Public involvement in peer reviewing research proposals: guidelines for commissioners. C2 Filesize 245 kb Public involvement on commissioning boards: guidelines for commissioners. C3 Filesize 181 kb Public involvement in research grant applications:guidelines for researchers. R1 Filesize 219 kb

2006, September Guideline providing information for members of the public interested in getting involved in peer review. This is one of a series of seven guidelines to help commissioners, researchers and the public to think about public involvement in research commissioning. (INVOLVE 2006) Peer reviewing research proposals: guidelines for members of the public.P2 No. of pages: 16.  Filesize 222 kb

2006, September This guideline is written for members of the public interested in being a member of a commissioning board. One of a series of seven guidelines to help commissioners, researchers and the public to think about public involvement in research commissioning. (INVOLVE 2006) Being a member of a commissioning board:Guidelines for members of the public. P3 No. of pages: 12.  Filesize 155 kb

2006, September This guideline is written for research commissioners interested in encouraging researchers to involve the public in research grant applications. Other guidelines in this series of seven are for members of the public and researchers. (INVOLVE 2006) Public involvement in research grant applications:guidelines for commissioners. C1 No. of pages: 12.  Filesize 212 kb

2006, September This guideline is written for research commissioners interested in involving the public in peer reviewing research proposals. It is one in a series of seven written to help commissioners, researchers and members of the public think about public involvement in research commissioning. (INVOLVE 2006) Public involvement in peer reviewing research proposals: guidelines for commissioners. C2 No. of pages: 12.  Filesize 245 kb

2006, September This guideline is for commissioners interested in involving members of the public on commissioning boards. Other guidelines in the series of seven are for researchers and members of the public. (INVOLVE 2006) Public involvement on commissioning boards: guidelines for commissioners. C3 No. of pages: 12.  Filesize 181 kb

2006, September This guideline is written for researchers interested in public involvement in research grant applications. There are other guidelines, in this series of seven, for research commissioners and members of the public. (INVOLVE 2006) Public involvement in research grant applications:guidelines for researchers. R1 No. of pages: 12.  Filesize 219 kb

2006, August This is an easy read summary of the report User Controlled Research: its meaning and potential.  (An easy read summary of a report about user controlled research by Michael Turner and Peter Beresford, 2005.) What User Controlled Research means, and what it can do. No. of pages: 14.  Filesize 579 kb

2006, August INVOLVE Operational Plan 2006-2007 No. of pages: 34.  Filesize 200 kb

2006, August This guide is a revision of a previous guide first published February 2002. The guide is intended primarily for the use of researchers and may also be useful for research commissioners. It includes guidance on reimbursement of expenses and payments for time, skill and expertise. (INVOLVE)revised August 2006 Guide to reimbursing and paying members of the public actively involved in research No. of pages: 20.  Filesize 133 kb

2006, July (Nick Partridge) INVOLVE Response to the Review of UK Health Research July 2006 No. of pages: 6.  Filesize 98 kb

2006, July The paper looks at why people choose to get involved in research, and, in turn identify barriers that may prevent others getting involved. The paper discusses: What motivates people to get involved in research; Who gets involved and ways of involvement; What are the factors influencing motivation and How to support motivation  (Maryrose Tarpey INVOLVE Support Unit) Why people get involved in health and social care research: a working paper No. of pages: 27.  Filesize 126 kb

2005, November (Michael Turner and Peter Beresford Shaping Our Lives and the Centre for Citizen Participation, Brunel University 2005)Full Report User Controlled Research: its meanings and potential. Full Report No. of pages: 137.  Filesize 1208 kb

2005, July A summary of the full PC11 Report presenting the essence of the research and its findings. This is an evaluation of the impact of consumer (service user/carer) involvement in 11 research projects known collectively as the London Primary Care Studies Programme. All 11 studies were required to include service users/carers within the research project, training and support was also commissioned for everyone involved. The evaluation also considered the impact of this and any other training that took place among the 11 studies. Includes policy recommendations and recommendations for best practice.  (A Barnard, M Carter, N Britten, R Purtell, K Wyatt, A Ellis.) Summary of PC11 Report. An evaluation of consumer involvement in the London Primary Care Studies Programme No. of pages: 22.  Filesize 525 kb

2005, July User controlled research has been developed by service users and their organisations as a new approach to undertaking research and evaluation. The aim of this project was to find out more about the definition, nature, operation, problems and potential of user controlled research. It was carried out both through a literature review and through information provided directly by a wide range of service users and service user researchers in a series of individual interviews and group discussions. This Report provides the first in-depth discussion and analysis of user controlled research. The full report will be available on the website shortly. (Michael Turner and Peter Beresford Shaping Our Lives and the Centre for Citizen Participation, Brunel University, 2005. ) Report Summary User controlled Research. Its meanings and potential No. of pages: 11.  Filesize 238 kb Available in 20pt font

2005, March An informal snapshot of the event based on the personal reflections of some of the people who were at the conference. This version contains photos from the conference. (INVOLVE)Contains photos Conference Report 2004 No. of pages: 21.  Filesize 1226 kb Available in large font, 35 pages,1120 kb.

2005, March An informal snapshot of the event based on the personal reflections of some of the people who were at the conference. This version contains no photos. (INVOLVE)Without photos INVOLVE Conference Report 2004 No. of pages: 19.  Filesize 296 kb Available in large font,33 pages, 227 kb.

2004, October A report of a seminar held on April 22nd 2004 and organised by INVOLVE. At the seminar the TRUE Project who INVOLVE commissioned to look into training for public involvement in research, presented their findings. The seminar also involved a high level of delegate participation and this report documents the discussions and recommendations made at the seminar and reflections from the discussion groups. It also contains a summary of the key issues in relation to public involvement in research that were highlighted during the day. (R. Steel, INVOLVE) Training for Public Involvement in Research: Seminar Report No. of pages: 42.  Filesize 696 kb

2004, October EQUIP is a collaboration of trainers with expertise in a diverse range of health-related fields, all with a 'public involvement' focus. This report is on the training they provided to support consumers and researchers in 11 London Primary Care Projects from 2001-2004. They discuss the difficulties they faced as well as reporting on the training workshops they held and their approach to providing outreach to each of the 11 projects. (Linsey Hovard, Sally Crowe, Nain Hussain) Effectiveness and Quality in User Involvement Projects (EQUIP) Final Report No. of pages: 113.  Filesize 1843 kb

2004, September Developed with a group of young people and older adults who have been involved in research. The guide contains information on: the benefits of involving young people; when and how to involve young people; what are the power issues of involving young researchers.  (Perpetua Kirby) A Guide to Actively Involving Young People in Research:for researchers, research commissioners, and managers No. of pages: 34.  Filesize 566 kb

2004, April (Lockey R, Sitzia J, Gillingham T, Millyard J, Miller C, Ahmed S, Beales A, Bennett C, Parfoot S, Sigrist G and Sigrist J - Worthing and Southlands Hospitals NHS Trust ) Full report: Training for service user involvement in health and social care research - a study of training provision and participants' experiences. No. of pages: 162.  Filesize 1498 kb

2004, April Information sheet for researchers interested in involving the public in public health research. Includes information on who to involve and how to find the right people. (INVOLVE ) Getting started with involving the public in health research: an information sheet for researchers No. of pages: 2.  Filesize 101 kb

2004, March ((Lockey R, Sitzia J, Gillingham T, Millyard J, Miller C, Ahmed S, Beales A, Bennett C, Parfoot S, Sigrist G and Sigrist J.) Worthing and Southlands Hospitals NHS Trust) Report Summary: Training for service user involvement in health and social care research- a study of training provision and participants' experiences. No. of pages: 4.  Filesize 116 kb

2004, February This is an introductory document designed for researchers with no previous experience of involving members of the public as active partners in research. It is a revision of the first edition which was published in 2000 and includes the more recent work of INVOLVE in the Policy Research Programme (PRP). Involving the public in NHS, public health, and social care research: Briefing Notes for Researchers No. of pages: 73.  Filesize 596 kb This document is also available in large print ( 20 point font);161 pages, file size: 2.04 MB

2004, January Full consultation document also available Brief Summary for Involving Vulnerable and Marginalised People No. of pages: 3.

2004, January Full Consultation Document for Involving Marginalised and Vulnerable Groups in Research No. of pages: 16.  Filesize 225 kb

2004, January (A report to INVOLVE by Alison Faulkner) Capturing the experiences of those involved in the TRUE Project: a story of colliding worlds. No. of pages: 27.  Filesize 382 kb

2003, July This report is a summary of the presentations and discussions held on 2 July 2003, when invited members of the public, commissioners and researchers with experience of public involvement in the commissioning process attended a one day workshop. Report of the Commissioning Workshop No. of pages: 21.  Filesize 395 kb

2002, December Consumers in NHS Research commissioned this piece of work to identify the types of information that are important to potential trial participants and to appraise the ways in which that information could be provided. The assessment was to reflect the perspectives of: people who have recently been approached to take part in a trial, those actively looking to volunteer for a trial, consumer representatives, and the researchers who design and conduct such trials.  (Marion Campbell, Vikki Entwistle, Anne Langston, Zoe Skea, Health Services Research Unit, University of Aberdeen)Full document Scoping study to explore the most appropriate way to produce and disseminate information on the quality of randomised controlled trials for potential participants known as PACT(Participants' Assessment of Clinical Trials) No. of pages: 43.  Filesize 467 kb

2002 Consumers in NHS Research commissioned the Health Services Research Unit, University of Aberdeen to assess the types of information that are important to potential trial participants and appraise the ways in which that information could be provided. (Campbell M, Entwistle V, Langston A, & Skea Z)Executive summary RCT Scoping Study to explore the most appropriate way to produce and disseminate information on Randomised Controlled Trials for potential participants (PACT) No. of pages: 4.  Filesize 21 kb

2001, October The project was designed to investigate the extent and nature of the involvement of lay people in research in fields other thatn health, and to highlight lessons that can be transferred to health research. (Baxter L, Thorne L, & Mitchell A) Small Voices, Big Noises. Lay involvement in health research: lessons from other fields - FULL REPORT No. of pages: 152.  Filesize 679 kb

2001, September A guide for people who would like to be actively involved in health research, not as 'subjects' but as consultants, partners and leaders in research commissioning and research work. Getting Involved in Research - a Guide for Consumers No. of pages: 50.  Filesize 796 kb  OUT OF PRINT IN HARD COPY-DOWNLOAD ONLY

2001, September (Thorne L, Purtell R, & Baxter L,) Knowing How - a Guide to Getting Involved in Research by Folk.Us of Exeter University No. of pages: 26.  Filesize 756 kb

2001, March This study examined the nature and extent of consumer involvement in research activity managed by the Department of Health regional offices. (Buckland & Gorin, 2001) Involving consumers? An exploration of consumer involvement in NHS R&D managed by Department of Health Regional Offices No. of pages: 56.  Filesize 162 kb  OUT OF PRINT IN HARD COPY-DOWNLOAD ONLY

2001 (Baxter L, Thorne L, & Mitchell A) Small Voices, Big Noises. Lay involvement in health research: lessons from other fields - EXECUTIVE SUMMARY No. of pages: 4.  Filesize 46 kb

2000, December A summary of the presentations and discussions of a seminar held on 11th December 2000. The seminar was attended by consumers, researchers and others with an interest in the active involvement of consumers in randomised controlled trials (RCT's) Involving Consumers in Randomised Controlled Trials No. of pages: 31.  Filesize 73 kb  OUT OF PRINT IN HARD COPY-DOWNLOAD ONLY

2000, September Report of a seminar held on 26 June 2000 Involving consumers in commissioning health research No. of pages: 15.    OUT OF PRINT IN HARD COPY-DOWNLOAD ONLY

2000, January Conference report for Consumers in NHS Research Conference held on Friday 28th January 2000. Research:Who's Learning? No. of pages: 44.  Filesize 190 kb  OUT OF PRINT IN HARD COPY-DOWNLOAD ONLY

1999, October Booklet written to make Research and Development in the NHS more accessible. Research & Development in the NHS. How can you make a difference? No. of pages: 31.  Filesize 77 kb  OUT OF PRINT IN HARD COPY-DOWNLOAD ONLY

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