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Alzheimer's Association
The Quality Research in Dementia Programme (QRD) is an active partnership between carers, people with dementia and the research community.
http://www.qrd.alzheimers.org.uk/
Bradford Alliance on Community Care
BACC was set up in 1989 by community and voluntary groups and organisations to strengthen the voices of community care service users and carers in the planning of health and social care services across the Bradford Metropolitan District.
http://www.bacc.uk.com
CancerVOICES
CancerVOICES is a UK-wide network of people affected by cancer who are helping to shape the future of cancer care supported by Macmillan Cancer Relief
http://www.cancervoices.org.uk/
Centre for Mental Health
The Centre for Mental Health (formerly Sainsbury Centre for Mental Health) is a charity that works to improve the quality of life for people with severe mental health problems. It carries out research, development and training work to influence policy and practice in health and social care.
http://www.centreformentalhealth.org.uk
Involvement Helpline
Milton Keynes Citizen’s Advice Bureau offers a specialist benefit and tax credit advice service called the Involvement Helpline. It provides confidential, personalised and professional advice to anyone who is considering paid or voluntary involvement with health or social care organisations that subscribe to the service
http://www.mkweb.co.uk/Citizens_Advice/DisplayArticle.asp?ID=55383
Joseph Rowntree Foundation
The Joseph Rowntree Foundation is one of the largest independent social policy research and development charities in the UK. It supports a wide programme of research and development projects in housing, social care and social policy.
http://www.jrf.org.uk/
MS Society Research Network
The MS Society Research Network (RN) was launched in 2002. It has 148 members - all people who have experience of living with MS or caring for a person with MS.
http://www.mssociety.org.uk/research/research_network/index.html
Strategies for Living
Strategies for Living is a programme of work aiming to promote and encourage the development of user/survivor empowerment through research, evaluation and information gathering. They have an Us as Experts( User led research forum) which is an email discussion group for service users and survivors undertaking or interested in research. The user led projects were completed in 2003 and the project summaries and final report is available on the website.
http://www.mentalhealth.org.uk
TriMe (Trials in Mental Health)
The site is for the UK general public. It aims to:
* Give you information about mental health research that is
happening, so you can think about getting involved.
* Help you make informed choices about the best research for you.
* Improve recruitment into high-quality mental health research by
improving communication between you and the people running the
trials.
* Contribute to a better understanding of mental health research by
the public.
http://www.trime.org.uk
Warwick Diabetes Care Research User Group
The Warwick Diabetes Care Research User Group at Warwick University started in 2001. Its volunteer lay members are either uses or carers living with diabetes. They assist the research staff in all aspects of diabetes research from first ideas to the final outcome. The group meets regularly and adds its perspective to all matters of the research. Because of their enhanced reputation members are called upon to have an input in many other areas of the activities of Warwick Diabetes Care. They attend and are involved in many conferences and a whole variety of events.
http://www2.warwick.ac.uk/fac/med/study/cpd/subject_index/diabetes/wdc
/usergroup/
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