INVOLVE was established
to promote public involvement in research, in order to improve the
way that research is prioritised, commissioned, undertaken, communicated
and used. We believe that the active involvement of the public in
the research process leads to research that is more relevant to people
and is more likely to be used. Research which reflects the needs
and views of the public, is more likely to produce results that can
be used to improve practice in health and social care.
We use the term ‘public’ to include:
- patients and potential patients;
- people who use health and social services;
- informal carers;
- disabled people;
- members of the public who are potential recipients of health promotion programmes, public health programmes and social service interventions;
- groups asking for research because they believe they have been exposed
to potentially harmful subtances or products (e.g. pesticides
- organisations that represent people who use services.
The term ‘the public’ also embraces the rich diversity of people in our multi-cultural society whether defined by age, colour, race, ethnicity or nationality, disability, gender or sexuality who may have different needs and concerns. These need to be taken into account in our policies, procedures and practices.
By ‘involvement’ we mean:
An active partnership between the public and researchers in the research
process, rather than the use of people as the ‘subjects’ of
research. Active involvement may take the form of consultation,
collaboration or user control. Many people define public involvement
in research as doing research ‘with’ or ‘by’ the
public, rather than ‘to’, ‘about’ or ‘for’ the
public. This would include, for example, public involvement in
advising on a research project, assisting in the design of a project,
or in carrying out the research.
INVOLVE meets four times a year and includes a broad mix of service
users, informal carers, representatives of voluntary organisations,
health and social services managers and researchers. Members of the
main Group are appointed by the Director of Research, at the Department
of Health. INVOLVE reports through the Steering Group for National
Programmes to the Director of Research.
INVOLVE is supported by a Coordinating Centre based in Eastleigh, Hampshire. Staff are employed by the
University of Leeds.
For further information we have a leaflet explaining the work of INVOLVE. See our Easy Read Leaflet .
To find out more about our work please visit the other sections in About
INVOLVE and read our INVOLVE Strategic Plan 2007-2011.
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